Tyson and Landon
You can send donations to:
ReGenesis Foundation
825 North 300 West
Salt Lake City, UT 84103
**put in the memo for
Joey's Breath of Life**
Tyson and Landon are 2 years old and love being outdoors, playing with
musical toys and visiting their brother at the cemetery. Tyson and Landon
live in Hill AFB, UT with their mom, Laura, and dad, Jared.
--------- Tyson and Landon were born 4 months premature on July 15,
2005 in Biloxi, MS. Tyson and Landon are actually surviving triplets. After a
pulmonary hemorrhage and cardiac arrest their brother Preston passed away
on his second day of life. At birth Tyson was 1lb 8oz and 12 ¼ in, Preston
was 1lb 6oz and 12in, and Landon was 1lb 8oz and 12in. Tyson and Landon
are now 2 years old and both weigh about 22lb and are around 30in tall.
The boys have been diagnosed with Periventricular Leucomalacia (PVL)
which is the degeneration of white brain matter. Along with PVL came
cerebral palsy (CP), from which Landon is hypertonic (tight), and Tyson is
hypotonic (loose). Tyson also had grade 2 and 3 brain bleeds on his second
day of life. Both boys have Bronchopulmonary Dysplasia (BPD) from having
such premature lungs, being ventilated/ oscillated, and from pulmonary
hemorrhaging. Both have stage 5 Retinopathy of Prematurity (ROP) and are
therefore completely blind in both eyes with no light and dark perception.
Both Tyson and Landon suffer from Sensory Integration Disorder and Oral
Aversion.
Landon lived in the Neo-natal Intensive Care Unit (NICU) for the first 170
days of his life and Tyson spent the first 201 days of his life in the NICU.
Overall the boys have spent over 11 ½ months of their lives in the hospital
and have had over 38 surgeries combined and still counting.
Each week the boys go to Occupational Therapy, Physical Therapy,
Speech Therapy, and Vision Therapy to help them explore their
surroundings. Due to their diagnostics the boys’ development ranges
between 6 to 10 months old and yet this still exceeds doctors’ expectations.
Landon still requires oxygen when he sleeps and both boys are tube feed
due to their oral aversions.
Jared and Laura, the boys’ parents, try to give their boys all of the chances
they can get to improve their developmental skills. The chance for their sons
to do the hyperbaric oxygen therapy would be another chance for their boys
to defy the odds.
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